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Share your scoliosis stories!

When were you first diagnosed? When did you start wearing a brace and what was it like? What’s your curve? Anything you’d like to share 🙂

6 Comments

  1. Madison

    My high school offers a pre-engineering program which focuses on preparing students like me to excel in math, science, and engineering careers. As a final project in that program, I am required to find, justify, design, and test a uniquely individual research project. This project, when complete, will be presented at an open night for our engineering program. Because of my rough experiences with back braces, I decided to design and build a new and innovative back brace. The primary purpose of my project is to create a more flexible, comfortable, and concealable back brace for scoliosis.
    For part of the project, we need to conduct market research. So, I was hoping you could take a little time out of your day to fill out a brief survey and share it with former and current brace users you know.
    Thank you,
    Madison
    https://goo.gl/forms/U5SYpi2AycAMyV323

    Reply
  2. summer

    i was diagnosed a couple months ago. so i haven’t had my brace very long. i started wearing my brace in september which is still pretty hot where i live. i could only wear hoodies to cover my brace so you can image how miserable it was. my curve is very mild only 28 degrees so i’m lucky that a brace is the worst i deal with. i get so frustrated with the clothes i can and can’t wear and i hope that i can find someone who’s dealing with the same thing.

    Reply
    • Scolio Maister

      Hey Summer! I completely understand. My biggest struggle with the brace was how frustrating it was to find clothes I could wear in the hotter weather- especially because I had to wear a cami under my brace to prevent bruising or scarring. You should check out the Summer and Spring categories under Brace Style for ideas of light clothing to cool off in the heat. Personally, I found that wearing lighter clothes like cute simple t-shirts(that are looser and longer) and then accessorizing with jewelry or a hat was helpful. Graphic tees or patterned materials help disguise the bulkiness that a brace can bring too! If the bulkiness shows a lot in the back, then a light cardigan or kimono can it well. I hope you can find clothes that you can wear that you love! Don’t be afraid to try new styles. Eventually, as you wear your brace longer, you’ll be more familiar with what styles work best with your unique brace. 🙂

      Reply
    • ruby

      Hi summer! I just got my brace last month! my curve is 35 degrees! I found that jeans like mom jeans and a slightly baggy teeshirt is super comfortable and looks great too! You can’t tell i’m wearing it! Good luck!

      Reply
      • Scolio Maister

        Yes!! Mom jeans are such a cute look and they definitely do well to hide some of the brace. Since they’re looser, it doesn’t feel as hot when you wear them. Joggers or other similar styles work that way too!

        Reply

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